FAITH AND RELIGION AS A “RESOURCE OF MEANING” IN THE CARE OF RARE DISEASE
In the management of both ordinary and extraordinary events, religions act as “systems of meaning” offering cognitive, motivational, affective, as well as narrative resources, helping persons to give order to reality. Indeed, the stories enable to (re)think and (re)build events, in order to give a (new) perspective about life, especially when life is threatened by illness.