surveys and questionnaires

Sexual well-being in adolescent and young adults born with arm: the perspective of the patients

Purpose: Sexual well-being and sexual functioning are understudied in patients born with ARM. The aim of this exploratory study was to investigate sexual history, main fears, and problems encountered during sexual relationships. Methods: Before participating in a sexual education intervention, 21 adolescents or young adults (12 males; mean 28.8; SD 10.6) born with ARM, answered a ten-item questionnaire specifically developed to evaluate sexual well-being. Percentages and Chi-square were calculated. Results: 52.4% were married/had a partner.

Development and psychometric testing of a new instrument to measure the caring behaviour of nurses in Italian acute care settings

Aim
To develop and psychometrically test the Italian?language Nurse Caring Behaviours Scale, a short measure of nurse caring behaviour as perceived by inpatients.
Background
Patient perceptions of nurses’ caring behaviours are a predictor of care quality. Caring behaviours are culture?specific, but no measure of patient perceptions has previously been developed in Italy. Moreover, existing tools show unclear psychometric properties, are burdensome for respondents, or are not widely applicable.
Design
Instrument development and psychometric testing.

Translation and testing of the italian version of FAMCARE-2: measuring family caregivers' satisfaction with palliative care

Family satisfaction is an important outcome of palliative care and is a critical measure for health care professionals to address when assessing quality of care. The FAMCARE-2 is a widely used measure of family satisfaction with the health care received by both patient and family in palliative care. In this study, a team of Italian researchers culturally adapted the FAMCARE-2 to the Italian language and psychometrically tested the instrument by measuring satisfaction of 185 family caregivers of patients admitted into two palliative care services.

Urology in the time of Coronavirus. Reduced access to urgent and emergent urological care during the coronavirus disease 2019 outbreak in Italy

PURPOSE: The coronavirus disease 2019 (COVID-19) pandemic has put a substantial burden on the Italian healthcare system, resulting in the restructuring of hospitals to care for COVID-19 patients. However, this has likely impacted access to care for patients experiencing other conditions. We aimed to quantify the impact of COVID-19 on access to care for patients with urgent/emergent urological conditions throughout Italy.

The italian dementia with Lewy bodies study group (DLB-SINdem): toward a standardization of clinical procedures and multicenter cohort studies design

Dementia with Lewy bodies (DLB) causes elevated outlays for the National Health Systems due to high institutionalization rate and patients' reduced quality of life and high mortality. Furthermore, DLB is often misdiagnosed as Alzheimer's disease. These data motivate harmonized multicenter longitudinal cohort studies to improve clinical management and therapy monitoring.

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